Privacy Policy

Effective Date: October 1, 2025

Welcome to The Genome Village (“TGV,” “we,” “us,” or “our”). Your privacy is important to us. This Privacy Policy explains how we collect, use, disclose, and protect your information when you visit our website, use our services, or engage with our programs.

By using our website or submitting information, you agree to the practices described in this Privacy Policy.

1. Information We Collect

We may collect the following types of information:

a. Personal Information You Provide

When you interact with TGV — such as signing up for updates, requesting information, or contacting us — we may collect:

Name, email address, phone number, or professional affiliation
Organization or company name
Information provided through forms, surveys, or communications
Any other details you voluntarily share

b. Automatically Collected Information

When you visit our website, we may automatically collect certain information using cookies or similar technologies, including:

IP address, browser type, device type, operating system
Pages visited, time spent on the site, and referral URLs
General location data (city, state, country)

This helps us improve site performance and understand how visitors engage with our content.

c. Sensitive or Health Information

At this time, TGV does not collect or store protected health information (PHI) as defined under HIPAA.
If you choose to share health-related information (e.g., inquiring about genetic counseling services), that information will be handled confidentially and used only to respond to your request. When TGV begins providing direct genetic counseling services, a separate HIPAA Notice of Privacy Practices will apply.

2. How We Use Your Information

We use your information to:

Provide and improve our website, programs, and services
Respond to inquiries, comments, or partnership requests
Send newsletters, updates, or event invitations (with your consent)
Conduct research and analysis to enhance our offerings
Comply with legal obligations or protect our rights and users

We do not sell or rent your personal information.

3. Email Communications

If you sign up for updates or join The Genome Village community, we may send you informational or promotional emails.
You may opt out of these communications at any time by clicking “unsubscribe” at the bottom of our emails or contacting us directly at [insert contact email].

4.Information Sharing & Disclosure

We may share information only in the following limited cases:

Service Providers: With trusted partners who help operate our website, email systems, or analytics tools, under strict confidentiality agreements.
Legal Requirements: When required by law, regulation, subpoena, or court order.
Business Transitions: In the event of a merger, partnership, or transfer of assets, your information may be included as part of that process.

We do not share personal data for marketing by third parties without your explicit consent.

5. Cookies and Tracking Technologies

We use cookies and similar tools to:

Remember your preferences and login information
Analyze traffic and improve website functionality
Customize content and communications

You can control or disable cookies through your browser settings, but some features may not function properly if cookies are disabled.

6. Data Retention

We retain personal information only for as long as necessary to fulfill the purposes outlined in this policy, unless a longer retention period is required or permitted by law.

When no longer needed, we securely delete or anonymize your data.

7. Security

We take reasonable administrative, technical, and physical measures to safeguard your information against loss, theft, misuse, and unauthorized access.

While we strive to protect your information, no system is completely secure. We encourage you to share information thoughtfully and contact us if you have concerns.

8. Children’s Privacy

Our website and services are not directed to children under 13. We do not knowingly collect personal information from minors.
If we learn that we have inadvertently collected information from a child under 13, we will delete it promptly.

9. Your Privacy Rights

Depending on your location, you may have the right to:

Access, correct, or delete your personal data
Withdraw consent for communications
Request information about how your data is used

To exercise any of these rights, contact us at [insert email].

10. Links to Other Websites

Our website may contain links to third-party sites. We are not responsible for the content or privacy practices of those sites. Please review their privacy policies before providing any personal information.

11. Updates to This Policy

We may update this Privacy Policy periodically to reflect changes in our practices or legal requirements.
The updated policy will be posted here with a revised effective date.

12. Contact Us